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INTRODUCTION TO THE SHARED DECISION MAKING TOOL

Shared
Decision
Making

People with hemophilia A
or B and/or
their caregivers

Healthcare
professionals

tools

This tool was designed to guide and support people with hemophilia A or B and/or their caregivers in gathering information so that they can have more meaningful and collaborative conversations with their healthcare team. After using this SDM tool and talking with your healthcare team, you may decide to remain on your current treatment, modify your current treatment, change to a new treatment, or continue learning about your options. This tool will be updated as new information and treatments become available, and you can return to this tool at any point in your treatment journey.

This tool will help you to...

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A series of questions will guide you to reflect on your goals and how they relate to your hemophilia. A summary of your answers will be available at the end of the tool to assist your healthcare team and provide a starting point for discussion.

You will be guided through a series of videos and fact sheets to learn more about each treatment class.

A convenient side-by-side comparison table will help you compare your treatment options.

You may decide to include others in your shared decision-making journey. These often include family, friends, peers, your patient organization, and caregivers.

As you go through the tool, write down any questions you have for your healthcare team. The tool will also provide a summary of your responses: print this and bring it to your next appointment so you can take notes.

Bring your questions and summary responses, and take notes during your meeting.

Switching treatments is an important decision that can affect you, your family, your lifestyle, and your overall health. Take the time you need to consider all treatment options available to you. We encourage you to revisit any of the steps and this SDM tool at any time in your decision-making journey.

Bring any remaining questions you have and discuss the next steps. You may decide to remain on your current treatment, modify your current treatment, change to a new treatment, or keep learning about your options. It is important to know that most treatment options allow you to return to the shared decision-making process (and this tool) at any time. Making no treatment change is also a decision.
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Additional Resources | References

Psychosocial Burden